What a week! I've been having contractions since Sunday. My back pain was so unbearable I literally cried all night. Ricky did his best to take care of me and at some point in the wee hours of the morning I finally passed out. Monday I called my doctor because I was experiencing the same type of thing that she has me go to the hospital for a day or more. The bad news was she was out of the country until my appointment on Wednesday afternoon! I could have died. The nurse told me to go to the hospital but I freaked out and wouldn't go because my doctor was no where near a hospital. The nurse and I compromised on going to the office and her hooking me up to the monitor to see if I was having contractions. And of course I was so she said I had to go to the hospital and the doctor filling in for my doctor would treat me. Hours later, I was on my way home. In the wee hours of that night, we ended up getting everyone up and driving towards the hospital because I was in horrific pain but before we got to the major freeway, it had let up and I could deal with the pain. I have such a fear of her not being there to help me. Fast forward to Wednesday, I probably have yet another UTI so I'm on antibiotics again but I'm really starting to wonder if it could be a kidney stone because the pain is so bad in my right kidney and then that makes my back injury pain the worse ever. Anyway, on to some good news, Truette weighs 3 pounds 9 ounces! Which is CRAZY and bigger than what the baby books say :) We are so excited about this! She is also 50% fetal growth which is PERFECT! The doctor said the baby looks great and she isn't worried a bit. Huge relief! Sunday will be 6 weeks until she is here! I am begging the doctor to for sure take her at 37 weeks which is considered full term because of the 24/7 back pain. Plus, she has already said I won't make it to 40 weeks and I don't want to be in an unplanned situation again. Although, Ricky thinks it may be better not to have it scheduled since I am already freaking out about having another c section. I am more like terrified but whatever.
Brody had his yearly eye appointment today. It wasn't the best news. The past month or two, I've noticed his vision changing. He would do things like stand very closely to the television and always have his head tilted to the left and back. I've been on him to "fix" his neck and stand back from the TV. I even made him start laying down to watch TV to try to fix the neck tilt. Anyway, last year at the appointment the doctor told me not to patch his left eye anymore so we stopped. Well, he has gotten so lazy with his vision and it's really messed up his right eye (that is his very bad eye) to where now he isn't using it at all and relying only on his left good eye. So now we have to do 4 hours of patching the left eye every single day of his life no matter what to see if it will fix the muscles he has messed up in the right eye. We have to do this for 4 months and go back to see the doctor. The right eye is now so bad that when they put the patch on in the office, I asked him to walk to the door in the exam room and back to me and it was like he was completely blind. I had to hold his hand all day today when walking and had to put his food in his hand so he could feed himself. I knew something was going on and am glad we at least have something we can try to fix the problem.
Tomorrow, he has his appointment with his Neurologist. It's time to get real with his doctor. Overall, Brody just doesn't have the knowledge he should. He is very sweet, well mannered, and social (to a point) but he can't answer simple questions most of the time. He has no concept of using the bathroom, since the seizures last year, he never fully regained the academic side. You can ask him a question that he knows and he just says "UM" and tries for a really long time to figure out the answer but it doesn't come to him. I am looking into a program next week that will be very intense interventions. My hope is that it is a right fit for Brody and that we can get him to a point where he is successful in a school setting. At this point, I don't think he can be successful in any type of preschool or even ISD school setting. He is very well behaved so I think because of that he is overlooked in what he is actually learning and is not learning or understanding the concepts.
So it's been a crazy week. Update soon!
KP
