With everything going on in our crazy lives I almost forgot to announce/ celebrate some pretty awesome news... After 9 long, long, long weeks of repeated calls and watching another week pass, we finally got Gracie's blood test results from Genetics and guess what??? She is fine and they came back perfectly normal!!!!!!! So as of today, we've done blood test after blood test, full body XRAYS, MRI's, you name it, we've tested it and they've all came back 100% normal! Praise God! And she is developing so good and is really smart and overall just perfect!
I'm not sure if we will follow up with Genetics or not. I've been on the fence for a while about it and now knowing that we've tested for yet another syndrome and it's come back negative, I just really am not sure if it is worth it. Plus, with Ricky now doing all the doctor appointments, I'm pretty sure he'd only go to one with them pointing out all her "flaws" for him to say go to hell and never go back... it's always a really hard appointment. So until we decide, we'll just celebrate and be so incredibly grateful!
In other really amazing/ awesome news, Ricky took all three of the kids to the eye doctor yesterday. If you all remember, the girls were discharged from the opthomologist officially in January 2010 but that was from Dr. Coats who totally misdiagnosed Brody so his "expert opinion" has meant nothing to us. Anyway, they all went yesterday. Ricky said it was a horrible appointment because mainly Madi freaked out which I say, welcome to my world all these months! Anyway, the girls vision is just fine and they won't need to be seen again until they are three years old. Brody's VI teacher made the appointment as well which means the world to me and us since she isn't required to go by any means and the appointment is all the way on the south side of Houston! Anyway, Brody's team of doctors think he is doing well and that the new glasses are very good for his near sightedness. They do think we are kind of doing overkill on having the team of vision doctors we have and said it was up to us what we wanted to do. Which is probably true, just at the Nova clinic he has two doctors that are always his doctors and two other residents so a total of four doctors at every appointment. And then we have a retina specialist as well that is in the Medical Center. It's really hard for me especially after Dr. Coats misdiagnosing Brody and telling us his vision was "just fine" when all that time Brody was legally blind and color blind and desperately needed glasses. I never want to be in a situation where we are missing something so big and I could not imagine if we never got a second, third, and fourth opinion!
I can never describe how lucky we are and I can never accurately explain where we've been. I just always want to remember those darkest days so we can always fully appreciate where we are now. Make no mistake about it, my kids' lives are amazing and I feel God's presence in our lives every single day. Things just fall into place and I'm so undeservingly blessed.
The kiddos are finally over whatever they had, thank goodness! Ricky is working on Saturday and depending on the weather, the kids and I may get out and do something. I'll update again soon!
Krista
