Friday, April 15, 2011

Another Friday.... already?

It amazes me how fast each week goes by. They never went this fast when a was in the work force.
Anyway, we have had an incredibly busy week and as we are going into the weekend I've realized a couple of things: 1 it is way to hard for me to go to appointments by myself with triplets. 2 no matter what the doctors tell you or point out that is "not normal" about your children, they are still literally my hearts outside of my body and no matter what we go through or what happens, end the end we will be fine all 5 of us.
On that note, Wednesday the kiddos had therapy and we got our house painted, Thursday we finished getting our house painted and we had Gracie's appointment in the Medical Center with Genetics.
How is this statistic: only 50% of the time they are able to find out what a child has. Seriously? So you want me, the control freak I am to be able to have all these doctors- you included Mr. Genetics point out all these "flaws" with my sweet little love only to never have a name, answer, how to treat, anything? Well, on with the info from the appointment.... my favorite part was when he told me that Gracie and I have the same shape eyes. He pointed a lot of things out that I'm not ready to share and I may never be. We are going to do an MRI of her brain, blood test,  XRays of her entire body- every bone, and if the blood work shows anything then we will be back ASAP but if not we will be back in 4-6 months. They will want to follow her for years since this isn't something that just changes or goes away. I do want to make it very clear that there is nothing WRONG with Gracie and she is NOT DEFORMED or anything but there are a couple of little quirks we need to figure out so we all know how to proceed with things as minor as therapy. With that being said, I'm EXTREMELY guarded about her and the other two so please know if you say a single negative thing about them or this then I will shut this blog down in a second. Ricky and I will not tolerate ignorance.
On a much happier note... Gracie got her cranial helmet today!! I'm telling you there is not a cuter little girl in a helmet. The pink fits her little personality to a T. Her name fits her perfectly because again, she handled it with such grace and with a smile. There is something about her and I wish those who haven't could meet her. She touches your soul.
Wish us luck on our road trip. We are so excited to get out of the house and we LOVE where we are going!! I will post pictures of our weekend when we get back on Saturday night. Sunday our sweet little neighbor is making homemade Mexican food (because I asked her) Love Mrs. Lupe!!

Have a great weekend!

Krista