Brody bear
Tuesday, January 25, 2011
we (heart) therapy
Our OT therapist came out today. We LOVE her! She has 5 children and only one of those children are "normal" Her middle child that is 11 has a G Button so she knows all about feeding issues. Her oldest has very low muscle tone as does Brody so she is experienced there too along in many other areas.
Brody has very low muscle tone. This has a lot to do with Neurological issues. Only time will tell what his muscle tone will be but we will work very hard to get him functioning as best he can. Right now, his brain is not getting the correct signals with touch, head control, etc. As far as feeding, his mouth muscles are extremely tight and he gets very fatigued when drinking a bottle. Mix this with him being "hard headed" equals a very stressful feeding. I have new exercise and stretches to do with his mouth (of course he hates it). It is very hard for me to comprehend these issues. He is so big and looks so healthy but when he can't move about like he should, its hard.
Gracie's arms are concern to the therapist. She thought one was longer than the other which it is. Her neck has more issues than just favoring the one side. Her neck muscles are very short on one side. She also has the issues with her leg and foot as well as not being able to lift her head.
We are going to get an order for Madi to have OT and PT as well since they will be able to work with sitting up and crawling.
The good news is they will be able to follow the kids until we decide to stop treatment. I'm very excited about that. Also, if the kids need any assistance when they start school, having all these things in place will help make getting those services a lot easier.
I hope that the babies will be able to sit up by their first birthday. This will be a big goal but I think we have enough time to accomplish it. Since they will be so small, Ricky and I have been talking about a smaller event for their big day. At this point, they wouldn't be able to eat cake or understand to blow out a candle. I'm not sure if term babies at age 1 can do this but we know ours aren't there yet. Whatever we decide, we will have our family and friends with us ;o)
Krista
Brody has very low muscle tone. This has a lot to do with Neurological issues. Only time will tell what his muscle tone will be but we will work very hard to get him functioning as best he can. Right now, his brain is not getting the correct signals with touch, head control, etc. As far as feeding, his mouth muscles are extremely tight and he gets very fatigued when drinking a bottle. Mix this with him being "hard headed" equals a very stressful feeding. I have new exercise and stretches to do with his mouth (of course he hates it). It is very hard for me to comprehend these issues. He is so big and looks so healthy but when he can't move about like he should, its hard.
Gracie's arms are concern to the therapist. She thought one was longer than the other which it is. Her neck has more issues than just favoring the one side. Her neck muscles are very short on one side. She also has the issues with her leg and foot as well as not being able to lift her head.
We are going to get an order for Madi to have OT and PT as well since they will be able to work with sitting up and crawling.
The good news is they will be able to follow the kids until we decide to stop treatment. I'm very excited about that. Also, if the kids need any assistance when they start school, having all these things in place will help make getting those services a lot easier.
I hope that the babies will be able to sit up by their first birthday. This will be a big goal but I think we have enough time to accomplish it. Since they will be so small, Ricky and I have been talking about a smaller event for their big day. At this point, they wouldn't be able to eat cake or understand to blow out a candle. I'm not sure if term babies at age 1 can do this but we know ours aren't there yet. Whatever we decide, we will have our family and friends with us ;o)
Krista
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