Wednesday, September 26, 2012

I carry your heart. I carry it in my heart. -e e cummings

Gracie update

Gracie is still in the hospital. She is still requiring oxygen. I asked for a Pulmonologist to see her today. Finally at about 5pm the doctor came by. She ordered an xray to make sure her lungs have not partially collapsed. Gracie has been turning blue 10+ times during the day.
They finally came and did the xray about 10:30pm and we are waiting for the results. She seems to be doing much better and her oxygen levels are in the high 90's now. The highest her oxygen levels were during the day were 94 but really staying between 88-92%. FYI, your oxygen levels are suppose to be 100%.
Anyway, we aren't worrying anymore about that since the levels are back up. We are actually pretty sure she will be coming home tomorrow but I'm not pushing her and if she needs to stay longer than so be it.
Her pain is very much there. She receives pain medication around the clock and at times need an additional dose of morphine. We did take her for a spin around the unit in the triplet stroller. She seemed to like that. She also sat up on the couch for a while today. She really wanted to get out of bed so that was good. It's hard to keep a two year old cooped up. Trust me, Brody and Madi have been wild... on purpose!!
I'm very nervous about what to do with her when she is home. I don't know if I should keep her in her bed or let her sit on the floor in the living room, what if she tries to crawl, will it hurt? So many unknown things! I've never had a broken bone (knock on wood) so I'm not sure how it feels to have your leg in a cast, pain levels, etc. Ricky of course has and has a rod and screws like Gracie but he was an adult when that happened to him. I guess we can let her lead the way and just support her and help her how we can.
Brody and Madi are going to school tomorrow. If for no other reason than to give Ricky, Gracie, and I a break! OMG! They are never bad but the past two days have been so horrible I think I have a twitch! :)
Thanks for praying for our girl. I'll update again soon.

KP

Gracie update

Thank you all so very much for making Gracie's Day possible. The love, support, and prayers were felt all day and night long.
Ricky and I were struggling with putting her through this surgery. In fact, after she was brought to the OR, I had a huge urge to tell them to stop and not do  the surgery. It was one of the hardest things to put her through. The waiting room here at Texas Children's is amazing. They have a tv that tells you which phase of surgery your child is in. I was able to check on her and checking meant actually being able to talk to a nurse in the operating room...how awesome is that? The surgery was suppose to be 3 hours long... It was SIX! I was so worried about her being under for so long because she was on full life support meaning the machines were doing all the breathing for her. Finally what seemed like eternity, the Orthopedic came out to talk to us. He said everything went great, she didn't have a lot of blood loss, it took so long because she is still so tiny, etc. He said he would check on her the next day. Another eternity latter, I was finally walking back to see our girl in recovery. I didn't know what to expect but the moment she saw me she reached out both her arms for me to hold her. After a SIX hour surgery she was able to do that! I love this girl so much!!
After about two hours she was moved from recovery to her room. She smiled the first time when she saw Brody and Madi. That made putting up with them acting up all day worth it.
After an hour or so she was smiling and danced to Mickey Mouse Clubhouse when it came on tv. I told y'all this girl is amazing! About 8:30pm she was worn out and needed to sleep but wouldn't with her bubby and sissy here so I took them home. Daddy and Gracie got to spend some time together.
This morning bubby and sissy could not wait to get here and stopped at the gift shop to buy her some balloons. Madi climbed in bed with her, rubbed her cast very gently, then patted her chest, and gave her a kiss on the cheek. She is the little mommy making sure her sissy is okay. Bubby climbed up, gave her a kiss, and said "I love you!".
The doctor came in and said if her pain is better and her breathing is better, she can go home today. We won't know more until this afternoon. I asked for a Pulmonologist to come in because her breathing is still in the low 90's and she is requiring oxygen. I'm not comfortable with her breathing right now. Prayers for that in her pain. I've been on them about keeping her pain under control and they've done a pretty good job.
I'll update again we I can. Please continue to pray for her recovery.

Krista