There are two definitions to the word RESILIENCE
1: The capability of a strained body to recover its size and shape after deformation caused especially by compressive stress
2: an ability to recover from or adjust easily to misfortune or change
This little Patton family of 5 should change our last name from Patton to Resilience because we are. We are strong. We are determined. We are soldiers. We've got this.
I have to admit this week has knocked me down and it's taken a little bit to get back up but I'm getting there. I'm excited that Ricky has one more work night and is off for the weekend. There is safety in that. I need us to be safe.
I'm taking Brody to the pediatrician in the morning because I need him to see Brody and to tell me one more time that he will be okay. I need him to show me what to do and to some how figure out a way to get Brody breathing should this happen again. Basically, I need him to talk me off the ledge.... for the millionth time in the past 2.5 years. Because I trust and value his opinion and advice.
Brody is doing really well. The Neurologist put him on medication two times per day to help keep him from having another seizure. The doctor warned me of the side affects of this medication. It could make him very aggressive. We are hoping it won't change his sweet personality. He really has the sweetest soul. He rarely is mad or throws a fit. I'm talking I could probably count on my hands how many fits he has had. He is just so loving. He gives people he has met once kisses and tells him he loves them. That is this little boy. That is what so many are missing out on. He is a pretty amazing kid. His newest thing is he yells out "Yee Haw!" all the time now. We have no clue where he picked that up but it's so funny!
We also learned Wednesday morning that all the labs that Brody has done in the past month came back and it looks like he has a problem with his kidneys. We don't know anything other than that at this time.
Tomorrow, December 15 will mark 2 years since Brody has been home with us. What it took to get him home and end that 5.5 month NICU journey will never leave me. To be honest the hospital did not want him to go home that day. They wanted him to stay longer but this momma grizzly bear had enough. I knew I had to get him home. I knew I could care for him better than the hospital and as crazy as some might think it is, I did take better care of him at home. He has thrived since the day he was home. Nothing will change my commitment to him- NOTHING!
Happy 2 years home Brody Bear!!
KP
