Today started off really bad. We woke up late, 7:19 had to be downtown at 8 for the Neurologist. Didn't get there until 8:45. Thankfully they still took us. Had a good appointment, went to leave and didn't have my wallet. I just knew it must had fallen out and everything was lost! I wanted to throw up the whole way home! Got home and discovered my wallet on the counter!! WHOO HOO!
School is finished and I had all my grades but one class. The class has been so hard because you had to use a specific software and everyone in the class was having problems with it. Last week I had to do the entire class over for a Saturday deadline because everyone's work was gone. To top it all off, I couldn't do the last 4 assignments because the software wouldn't allow it. So I was so stressed out just knowing I was going to fail the class and it wasn't even in my control. I was sick about this for days! Sunday I found out I had a 72 average which was terrible but today after everything including my final was graded, I ended up with a 79.65! I am so happy I passed! Now that I passed, I HATE that grade. I wish it was at least a B. Anyway, my first semester back was really difficult. The kids surgeries and Gracie's ER visit really made it more difficult. I'm happy I'm back in school though. My grades were 1 C, 2 B, 1 A.
I laid the kids down around 11:30 for a nap. Gracie was crying her eyes out about 10 minutes into it which is not like her. I waited 5 more minutes before going in to check on her. When I walked in her room I just screamed.... She was standing in her crib!!!!!!! STANDING!!!!! Not kneeling STANDING. She was crying and though there were tears coming down her face, she knew she did it. She did what they say may never be done... At 17.5 months old, Gracie Ann did it! And all by herself on her terms! The progress may be incredibly slow but it's progress. It makes the situations, the accomplishments so much more rewarding. For Madi most everything comes easy but for my other two, they fight so hard, work so hard and it makes everything we do worth it. I know Gracie will walk. I just feel it. Today was a huge step into that direction. Keep on keeping on Gracie Ann... You little fighter! I love it!
Brody seems to be doing really well visually the past couple days. Last night while I was reading their bed time stories he was so excited and loved looking at the pictures. Another reason why I love that time a day with them- although it is a lot of work by myself :)
When we were finished with our 5 bedtime stories last night, I told Madi to give her bubby a kiss and she did!! I told her give sissy a kiss and she did!!! It was so sweet and the very first time she ever did that . I got the girls situated and when Brody and I were leaving, I told the girls "night, night. I love yall" and Madi stood up and said "bye, bye" and waved, then laid down.... How awesome is my life??? BLESSED for sure! Madi is also blowing kisses now. She really is catching on very quickly.
ENT follow up: The doctor said Gracie is his very first case of the surgery to improve the sound of her voice did not work. He showed pictures of where her cord was clearly moved over and said you can't move it any further because you will close her airway. He said he was sorry he couldn't explain why it didn't work. The plan is to do the major surgery when she is 5 and we will look at reevaluating the situation when she is two. In the meantime, we are going to continue working on sign language.
Neurologist follow up: Both Gracie and Brody are delayed but only time will tell. They are not worried that there is fluid on the brain. We will check back in one year.
Tomorrow is Orthopedic and PM&R.
Krista
