You are off the ventilator! I am so proud of you! You have climbed Mt. Everest and have such stamina. You have your voice back already and look shocked when you hear yourself. I'm so excited to hear that sweet voice of yours and I can't wait until you say your first word.... momma (don't tell your daddy). You are ready to be home and I am so ready for you to be home. Our next challenge will be bottle feeding but I know you will do great. You are so amazing and a true miracle. Keep amazing me little boy and I promise I will spend the rest of my life making this up to you.
I love you with all that I am. Mommy
Hi y'all! Our little boy is off the vent! We are such proud parents of this little boy. This is a picture of him an hour after extubating. The tube he has in his mouth is his feeding tube which will end up being an NG (nose) tube very soon. The tape protects his face from the cannula as well as holds his feeding tube in place.... anyway, meet our sweet little boy Brody! He cries! and I can hear it!!!! I've not heard his cry since July 1 so this is such a gift for me. Please continue to keep him in your prayers since the next 72 hours will be crucial.
We took Gracie to see the ENT today. Good news is even if the vocal cord stays paralyzed the other one will adapt and she WILL be able to TALK! If the cord does not heal, she will need surgery when she is a teenager to correct the problem. Also, if it does not heal her voice will be very raspy. We will follow up with the ENT again in April.
Both the girls had their ROP appointment today. These appointments are horrible. The doctor clamps their eyes open with metal clips and takes a metal stick and pokes around on their eyes. They scream and I can't watch. Anyway, both the girls eyes are looking great but they are not out of the woods yet and we will go back in 2 weeks.
Overall, we had such an amazing day with a lot of accomplishments. Tomorrow we go back to the medical center for Gracie's recast, week2, download the apnea monitor, and blood draw for both girls... boo!
Thank you to everyone who has supported us, prayed for us, and loved us unconditionally. We know who our family and friends are and could not go through this without you all. We love you!
Please continue to pray for our babies as well as Ricky and I.
BL3SSED,
Krista
(quote by Vince Lombardi)
