Hope everyone is doing good.... we are!
Tomorrow we have Gracie's appointment with the ENT. I'm very ready for this appointment because I want more information about her paralyzed vocal cord. After that appointment, the girls have their ROP follow up. We have to leave the house at 7 am so I can get to the hospital (where Brody's at) to be there when they EXTUBATE him off the ventilator!!!!! The doctors asked if I wanted to be there and of course I do! I just hope we have enough time to celebrate with him and get to the ENT by 8:45... Where there is a will there is a way, right?
I'm so excited about Brody. I just hope he does well and can handle being on nasal cannula. To put this in perspective, we went from being on the ventilator for 18 weeks to ET CPAP for 3 days and is going on cannula. Cannula is nothing at all. I mean it really gives very little oxygen. It will be a challenge but he can do anything, I know that. He is so stinkin cute. I just wish everyone could meet him. He is almost 11 pounds! Just such a little chunk. Oh and he has a voice!! I've not heard his voice since July 1st (he was the only baby that cried when delivered) so I'm so excited to hear him CRY. Since Ricky will be leaving next Wednesday I made sure there was no chance Brody would come home while he is gone and there isn't. Bottle feeding is the next challenge we will go through with Mr. Brody but who cares.... he is getting off the VENT!!! Oh and I told the nurses I wanted to b.u.r.n the vent in the unit but I don't think they will let me.... darn.
The girls have been such a hand full! Oh my gosh... I'm so exhausted, you have no idea. They are both little divas. They just cry, cry, cry unless they have Mr. Binks aka pacifier. I think I might just go crazy this week. If not this week for sure next week when I've done this alone 24/7. I might weigh 20 pounds when Ricky gets back LOL (laugh out loud for those who don't know) Fine by me. Oh and another little tid bit... car seats with babies in them are heavy. You wouldn't think they aren't but they are. Add monitors and oxygen and you've got yourself a good e.x.h.a.u.s.t.i.n.g workout.
Prayer list
Brody's extubation
Gracie's ENT appointment
Girl's ROP appointment
Strength
Energy
Wish list
sleep
the girls to stop crying
Make it a great day!
Krista
