Brody is now 8 pounds!
I celebrate each ounce these babies gain. It is so amazing where they
are now and where they started. I will find out tomorrow if we are transferring him to Texas Children's Hospital. We have had some careless errors that have caused some set backs for him. Someone (no one knows who) let his tape come off and his vent tube went to far in his chest, this caused one lung to get too much oxygen (the other one could have collapsed) and when they finally realized it, the damage was done. They had to increase his oxygen from the upper 20s to mid 40s. This is a huge increase. It has taken him 48 hours to recover from something that was 100% preventable. It is extremely difficult for me to accept these errors. Our insurance has paid out over $7 million dollars to the hospital so the least they can do is make sure my babies are 100% safe at all times. We feel that since they have been there so long, they are not getting the best treatment/ not top priority. It is aggravating especially when Brody is working so hard to get better. He deserves better. Wish us luck because I'm sure the conversation isn't going to go over well.... just a feeling I have.
Gracie is on her way out the door. I took her car seat to the hospital today so when they order the car seat test its there. She has changed so much! Her hair is at least 2 inches long all over! She is just precious. Bottle feeding is going so well. She is finishing feeds within 15-20 minutes! That is awesome considering her paralyzed vocal cord. The other amazing news is her voice is starting to come back. It is a very soft voice but if you listen closely you can hear it. She is having an echocardiogram tomorrow and as far as I know, she will just need the sleep study and car seat test in order for her to come home.
Madi is having a lot of issues with reflux. I've had to suction her a couple of times. She hates it and so do I. Her apnea monitor has been going off a lot. She is breathing but not deep enough. Also, it seems to be worse when she is on her tummy because she gets to comfortable.
I know its really weird but I can't wait to get Gracie's car seat base installed next to Madi's Then we will just have Brody to bring home. The NICU is actually going to accommodate us (first time ever) and allow us to bring Madi for Gracie's discharge since we don't have anyone to watch Madi. Not that no one would but we aren't comfortable and others wouldn't be either with Madi's monitor and choking issues. Plus, we are a family and it should be a family event. This means Madi and Gracie will come along to bring Brody home too! Madi has her ROP appointment this week. I'm hoping this is the last one... fingers crossed.
I looked at some pictures of my dad today. I wish he were here. I can't imagine what he would think of these babies. It has been over 6 years and I still think about him daily and miss him so much. He always had crazy nick names for people. I wonder what he would call Brody, Gracie, and Madi ???
Hope everyone has a great week. It looks like this will be a wonderful week for us. It would be the sprinkles on the cake if we find out about Ricky's job ;o)
Krista
