I've been trying to get Madi to understand she is not an only child all day today. Has not gone over so well. She has to learn how to sleep on her back and in her bassinet or crib. Have I ever mentioned the child only sleeps on mine or Ricky's chest? We are the only ones to blame, we know so you don't have to say it. She also is not use to crying. If she makes a sound she is picked up again, we know. So today she has learned how to calm herself. It has been noisy here :o)
Gracie is coming home!! The OCRG (sleep study) test will be done tonight, she had her Echo, and will have her car seat test after the OCRG. Looks like Wednesday or Thursday for her homecoming. She is on continuous 1/8 of oxygen. They will know if she can stay at that rate or need to go up for feeds. Oh and she can hear. I already knew that but we have the test to prove it. I'm keeping all of the proof for all the babies to use to my advantage in several years ;o) I'm so excited!! but it is very bittersweet because of Mr. Brody.
Talked to the doctor regarding moving Brody to TCH. She totally understood our concerns about careless errors. She would love for him to stay there because the group has a history with him but understands if we want to move him. She suggested that if anything is out of sorts when we are there to address it immediately instead of letting it build up then it being too late. I don't really have a problem with that. Every time I see something off I call it right away, you just have to in this situation. I'm not sure what we will decide to do. Now that Gracie is moving, the only ties we will have is Brody's primary nurses. This doctor seems to think we have another week and a half at least with him on the vent. I don't understand this since he is getting very little support but I'm no doctor. She only had him today and one of our favs will have him for the remainder of the week starting tomorrow. We shall see what he thinks. They did order him a bounce chair to help with development. I'm excited and scared since he is still intubaited.
It is going to be a crazy busy week.
We have to: train with OT regarding Gracie's range of motion, bottle feed, have home oxygen and apnea monitor delivered, have car seat installed, have medications filled and pick up (down town, bummer), Madi's ROP apt on Wednesday, Gracie's Pedi apt on Friday, and Madi's RSV shot on Friday too. Has anyone figured out how to clone us yet??? Oh and I forgot... Ricky's on call this week :o( BOOOOOOO!
Krista
(quote from Ashley Smith)
