I have been working since 2011 to get the kids into a developmental and behavioral program through Texas Children's. I called this past December to find out where they were on the wait list to be told they didn't have our paper work from 2011 and we'd have to go on a new wait that was 18-24 months long. Well, I filled out all the paper work and made sure they had it, chewed them out, and let it die down. At the end of February I called to speak with someone of authority. Turns out they were making an exception for me since there was a mix up but someone was suppose to call me back that day with a date and time for our appointment. Of course I never got a call so I gave them a couple extra days and called them today. I had to get somewhat crazy on them but in the end we have an appointment!!! It isn't until July but we do have an appointment and I am so happy!! I have to take each child to their own appointment which is kind of a pain because we usually set the appointments together but I think it will work out because the appointment will be at least 2 hours long. They will be doing a lot of testing and evaluations and I will only be bringing one kiddo at a time so there are no distractions. This will kind of tell us what we are dealing with long term and what things we need to have going to help them thrive or what can be adjusted with what we are already doing to make it even better. So big appointments made today.
Ricky had training at work today and tomorrow so he is working days. The kids woke up and were searching the house looking for him and calling out for him. When he didn't appear with "Daddy" they started yelling "Ricky". By the end of the afternoon Madi was looking out the door waiting for him to pull up. When she grew tired of that, I had to open the door and she sat on the step waiting for him. Oh my goodness at the cheers when he got here.
Our house is so calm. It's amazing. Everything is cleaned, the house is styled, and in it's place. It's so nice to be here. The kids are doing so much better too. It really got my attention at how important a stable home is to a child when we were doing all the renovations. I know for our kids they thrive on a routine and order. So I don't know if it's the calmness of our house or if I really want Ricky to start working days again because it's better to have dinner as a family but today I really want Ricky to be home every night. The kids are going to be so busy this coming fall and will rarely be home during the day so it would be wonderful if Ricky went back to a regular schedule. Plus, he is aging LOL really though he is! It's so hard because he only sleeps 4 to 5 hours a day and I worry so much about him driving home in the wee hours of the morning. I don't know I just hope the best works out for our family.
With him working tomorrow and the kids going to school, it will be the first time in almost 3 years I won't have a to do list or someone to take care of. I'm pretty excited! Ricky said I won't know what to do with myself and will probably just sit in the parking lot. He is right about not knowing what to do but if I can't figure it out, I'll take a nice nap!
We took next week off with therapies because it's spring break. Little did I know months ago that instead of a resting week we'd have a crazy busy week. Monday Gracie has her last appointment with the Orthopedic that did her leg surgery. Couldn't be more proud of her and the progress she has made since the surgery. Thursday we have an appointment with the Pediatric Surgeon for Gracie's Hernia surgery. I hear it can be done as an outpatient but I hope we can wait until after vacation to have it repaired. Friday we are having a really awesome person come do a speech evaluation. I'm super excited about that and will share more details after the visit. So not as busy but still going next week. We finally got into Shriner's Hospital for the upper extremities Orthopedic for Gracie. That appointment is bright and early the following Monday. She will have to miss school but it was the only appointment they had as she is a work in and all the contracture specialist will be there as well to meet her. Oh and that Thursday the kids have to go to the elementary school and have the school nurse to an evaluation on them so they can be tested for PPCD. I think it's so stupid a school nurse is going to evaluate them. She is no where qualified to make any assessments of their health. Moving on... That was suppose to be a rundown of just next week and ended up being the next two.. it's how I roll people! And why not just throw in the following week is vacation :)
I'll update again soon.
KP
