We've had such a busy week. Monday the kids had school and of course loved it. Ricky and I had errands to run that took hours but we had so much fun just laughing and have a breather. We've not been without the kids since August and I wouldn't call running errands fun but we'll take what we can get. Anyway, the orthopedic's office was suppose to be setting up a wound care nurse to come in and take care of Gracie's leg. After the physical therapist evaluation Monday afternoon, I still had not heard from the nurse. I told her we needed a nurse out the next day but she had not contacted any companies or even had the doctor write the order. See this is when I have to become crazy and I hate it comes to that but it does. I had her give me the names of the companies she should have been calling for us to set everything up and started contacting them. Every single one turned us down because they didn't offer the type of coverage we needed. My last call was to our pediatrician out of desperation. The next day our pedi saw Gracie. He and his staff have graciously agreed to take on Gracie's wound care. This is above and beyond his responsibility to Gracie. He didn't do the surgery and this isn't his deal but being the person he is, he is taking care of our girl. Since Friday, her leg is a million times better then the pictures I posted a couple days ago. The pedi said if things keep going this well, her leg might be healed within two weeks or so. Anyway, I now take Gracie every day to his office and they clean and dress the wounds. It's a very painful process for Gracie. Very painful. This little angel doesn't cry one tear. Instead she makes a little sound when the pain is that unbearable. Today she melted all of our hearts and we were all on the verge of tears when I sat her up after the whole ordeal what did she do? She smiled that God given Gracie smile. And let me just say that the doctor and nurses know how painful it is and are so gentle with her. They are so sweet to her and talk amongst themselves of how she is such a soldier, can't believe how strong she is, how amazing she is, the list goes on and on.
These moments are so very humbling. I don't deserve to have these amazing children but I am so blessed I do. I will never get over that pinch me is this real feeling when it comes to these kids and just how wonderful they are and me, me of all the moms in the world was picked to be their mom. WOW!
Brody walks around and out of the blue will tell you "I love you". See, I told yall... we might as well be a puddle of just mush around here... these darling babies! He has been doing so well with his walking, looking down to step up or down- all that comes with his vision issues. He loves to sing the ABC song and will even say ABC, pause and wait for me to say DEF and he will go on to finish the song or we just keep taking turns singing. He gives his sisters and hug and a kiss every night and tells them "night, night" and "I love you". That is pretty much my favorite thing that they do. You can see how much they love each other. I melt.
Madi's physical therapist has been taking her to the park down the street from our house. They walk there on her therapy days. By the way, we trust him. He has been our PT for over a year and is really dedicated to the kids. Anyway, he has been trying to help with the separation anxiety she has. It's really sad because the only time she doesn't have it is when we drop her off at school. Today I had to take Gracie to the doctor and she was screaming and crying so bad Ricky called to tell me about it. I've talked to the doctor about it and even went to therapy to get some advice. I feel really bad about it but we just don't leave them- ever. Today she did speak to the PT and always smiles, blows kisses, and tells him bye.
The kids have school again tomorrow. Friday, the kids are going to another football game. Saturday, the kids are going to their first play to see Alice and Wonderland. Our neighbor is the theater arts teacher at the high school and we are really excited to go. I got the girls Alice shirts. They didn't have anything boy Alice related.
That's all for now!
Krista
