Friday, January 20, 2012

They didn't agree on much, in fact, they rarely agreed on anything, they fought all the time and they challenged each other everyday, but despite their differences they had one important thing in common, they were crazy about each other.

It's Friday! Today the tile guy will finish up. Thank goodness because we've not had a working bathroom since yesterday around 1pm. It's been a challenge to say the least.
This will be Ricky's last weekend off for a while. Next week they will officially, fingers crossed, start working  their regular work schedule. It's been rough with him being the only one pulling in income around here on those hours.
It's been an interesting morning around here and I'm probably writing this blog so I don't lose my mind. Madi has been in a very destructive/ destroy everything kind of mood the past two days. She ripped down the tree decor in her bed
- update: just getting back to the computer because she was ripping more of it down. Now Madi is in Gracie's crib and Gracie is in Madi's. Lord help ME! Anyway, back to what I was saying, she ripped it down and I'm not sure if I'll even be able to fix it. She also decided it would be great to get on my Mac and press a million buttons while I was washing dishes. I caught her when she had the wireless keyboard over her head and slammed it to the grown as I was screaming "NNNNOOOOOOOOOOO!!!!!!!!!!!!!!!!!!!!!!" Let's just say she got a pop on her butt and put in her crib. Well, she did a little damage that has taken me the past 45 minutes to finally figure out how to undo. I guess the only good thing is I've learned how the voice command works for when Brody needs it and I finally learned how to turn it off!
Lets see what else... Gracie is doing AMAZING with the pulling up and cruising around. She is so proud of herself and it makes it just that much more wonderful. Ricky was home yesterday morning while PT came out. The new PT is a guy which usually is kind of creepy but Ricky said that Gracie didn't cry one time which is a first and that he did really well with both her and Brody. I think it helps that she finally wants to be up right and on her feet. You know, some of you might not realize how big this is, that she is doing this stuff now but it is a really big deal. I mean so many doctors and therapist have given us really bad news all of her life, told us she may never walk, etc. and the fact is she is just one amazing little girl. Not because she is mine but because the little thing has been through hell, told she would never even live in this world- that is pretty much the lowest of lows, and she not only is living but really doing some pretty big stuff despite her disabilities.
Speaking of disabilities, you know I've always had this feeling my child or children would have disabilities. From a very early age I just had this feeling but I would never say it because I didn't want it to come true. It was always this really weird knowing. Well now that I do have children with disabilities, I cannot explain the impact their success and failures have on my life. I have only seen one person with such a will to succeed which was my dad when he was fighting cancer and trying to live. But with the kids, I see their will and determination and it is so astounding. I often think if I could have their will to conquer the world and I'm not sure that I would be able to. It takes a really strong person to go through what each one has and survive let alone succeed. So when I have those moments or days when the world just sucks because all "we" are going through and our disabled babies, I am very quickly reminded of how undeservingly blessed I am. I still cannot wrap it around this brain of mine why Ricky and I are so incredibly lucky to have these little humans as ours but seriously they are amazing and not because they are mine but because they are fearfully and wonderfully made. I guess where I'm at 2 years into this (since being pregnant and having them) is I fully am embracing and accepting where we are, what we've all been through, and am PROUDLY driving my Suburban with our handicapped license plate because the sky is the limit and we are riding in a rocket ship people! I'm not saying we will be totally perfect in what this world considers perfect but I'm not saying we won't and I'm also saying who  cares as long as we know we are loved, are happy, and successful in our own rights! OWN IT!
God is great and I see it even on the cloudiest days.

Krista