Shame on you for telling me he sees fine and basically I'm crazy- worried for nothing. Shame on you!
Shame on me for not getting a second opinion sooner.
I took Brody to the new eye doctor yesterday and told him all mine and Ricky's concerns; the cross eyes, eyes shaking, staring into bright lights including the sun, having trouble focusing. He actually LISTENED to what I had to say and did a lot of looking into his eyes. We were there for 2 hours instead of 10 minutes.
He asked me if Brody always tilts his head to one side. I told him yes and we always correct him. He asked me a couple of other questions about his grade III brain bleed and laser eye surgery for ROP when he was in the NICU.
Brody currently sees outlines and shadows. He tilts his head to one side because on that side his eyes don't shake as much and he can focus better. Brody will most likely need eye surgery. He was fitted for glasses. He stares at bright lights because it is stimulating to him and it isn't hurting his eyes due to what he sees.
I asked if he could see what I looked like and the doctor thinks that he can probably tell me from another person but as far as details he can't see them. It all makes sense. I should have trusted myself and got a second opinion sooner. The other doctor didn't even want to see him back until October. Just crazy. How did he get it so wrong? He was so great to Brody when he was in the hospital and had to have surgery. Texas Children's Hospital is great but sometime they get it wrong. I asked the doctor if Brody will be able to read and he said he thinks he will but is not sure on the type of print Brody will need.
Everything makes sense - everything. The way he stares at you confused while holding him and he is feeling your face- It all makes sense.
Moms- please if you never listen to a word I say every again listen to this: Trust yourself- always. You are your child's advocate and while you may not be a doctor you are MOM and you know your child best.
Krista
