Tomorrow morning Gracie will be measured for her cranial helmet. Her little body will be supported by braces from her feet to her head with her leg braces, neck brace, and helmet. I feel happy and kind of sad because it is so much but I know out of the 3 she is the only one that can handle this stuff. To think of where Ricky and I've been with us planning a funeral for this sweet little girl while I was pregnant to her now, she is a true miracle!
Something weighing heavy on my heart is the unknown with her. Her vocal cord paralysis, Genetics, her leg and feet, the fact she may have to walk with a walker. My guard is up so high for her. I'm ok with whatever she will need and whatever her best is but I'm hear to say that I will not tolerate ignorant questions or people being mean to her. Not that anyone has but the questions we get already are horrible and people are so mean to those who are not the "norm". You know what the best thing God gave her? It is her smile. She lights a room with her smile and little spirit. What a gift she is to us!
Krista
