Thursday, November 4, 2010

take one step forward and 10 back

Gather the troops its time for some serious praying...

Brody may be getting sick. They have taken some cultures from his vent tube and will know something within 48 hours. His x ray did not look good today so no vent changes were made. There is a new doctor on the case and she had no clue what I was talking about when I asked what the group decided as far a pressure support yesterday. Disappointed and aggravated would be putting it lightly. My response to all of this was the ventilator is doing more harm than good. I fell 100% about that. The tube has been down so long that germs form and colonize. He is on such little support, I just wish we had a doctor that would take a chance and challenge him. This doctor now wants to go all the way to 0 on pressure support then wean the peep. Pressure support wouldn't be gone until next week if we are lucky. I just don't understand how they can think that having a 4 month old baby on the vent is okay. I think a lot of careless judgements have been made and too many careless errors to count. I stressed the importance of seeing an end to the vent and the end coming sooner rather than later. I'm so over it. I just want to transfer him out of there so bad. This is a prime example of how rotating doctors screws everything up.
On a better note, ECI came out to enroll Gracie in their program. The therapist will be out in two weeks to start working with her.

Krista