Our AC is FIXED! WHOO HOO!!! And the best part.... it didn't cost much at all!
Gracie is now up to 4 bottles per day! They are doing her swallow function tomorrow to see if they can increase again and if they can decrease the thickener they are adding to her formula. The other wonderful news is OT has been coming in to work with her, stretching her hips, legs, neck, and feet. Today, OT was able to stretch her clubbed foot to the correct position! THIS IS MAJOR! THIS IS AWESOME! What this mean is when they go to cast it, they will be able to start much more ahead of the game. Gracie never stops amazing me. Oh my goodness and her hair. She has so much hair and it is wild child hair. She is so perfect.
Brody got his PIC line out today! WHOO HOO no more IVs! This means he is now on full feeds. They did his blood gas and x ray today. His levels look great and his lungs are looking better. They did not wean his pressure support only because they changed his diuretic from IV to PO (which means by mouth) they want to give him a couple of days to adjust to that. They plan to wean his pressure support to 6 on Wednesday.
Madi was pretty miserable all day today because it was HOT in the house. It actually got to 86 degrees in here. Yuck. Anyway, the Pedi called and weaned her off one of her medications! We are now down to 6! That is awesome!
Goals I would love to see this week:
Gracie on full feeds by Sunday.... it could happen
Brody weaned off the vent
Madi to get her appointment with the Pulmonologist (gggrrrrrr on that, they still have not called us)
I promise to post pictures soon. We take pictures every day but I've been to lazy to email them and upload them to the blog.
Krista
