Madi has no IV now!! WHOO HOO!!! She is now on 15 ml every 3 hours for feeds. She is doing well. The only tubes she has is her C Pap and her feeding tube.Brody is doing well too. I spoke to the doctor regarding his breathing tube and if he will have long term damage to his lungs because of him being on the vent so long. She said that he will be on the vent for another several weeks. He is doing better but his lungs are still sick. She said she is working on me being able to hold him next week even with the breathing tube in. I hope! In regards to long term, once he is home, he cannot get sick at all. If he gets sick there is a very high chance he would have to go back on the vent. It will be like this for the first 2 years. The good news is kids grow new lung tissue until the age of 7 so he will be ok but the first two years will be difficult. Ricky and I had no clue about this until tonight. We are very happy that he will be ok and healthy but it is going to be very hard to make sure there are no germs or sickness around him or the girls. From what the doctor said he will need to be followed very close by his pediatrician and not have him out of our home or people in our home. He is now 2 lbs 10 oz and has the IV out of his head! He does still have the pic line in for now.Gracie is doing good but still on the vent. The doctor didn't think she would be on the vent this long but she is needing the support. For the first time tonight Ricky and I gave her a bath. She did really great. We were a little nervous since this was our first time but all went well. They gave her 2 blood transfusions to help with her oxygen as well as giving her medication to help draw fluid off the lungs. She is 2 lbs 3 oz tonight. I will ask the doctor on Monday when they will start therapy for her hip/leg/feet issues.
I wish everyone could meet our babies so you can see how blessed Ricky and I are. The babies are so sweet and precious. Being a parent is amazing!
Krista
